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Are National Cancer Control Indicators for patient experiences being met in regional and remote Australia546.02 kB
Published VersionCC BY-NC V4.0, Open Access
Journal article
Are National Cancer Control Indicators for patient experiences being met in regional and remote Australia? A cross-sectional study of cancer survivors who travelled for treatment
BMJ Open, Vol.11, pp.1-10
2021
PMID: 33619187
Abstract
Objective:
To examine the health services experience of patients with cancer from regional and remote Australia using the Australian National Cancer Control Indicators (NCCI) guidelines as an assessment framework.
Design:
Cross-sectional.
Setting:
Queensland non-for-profit cancer accommodation lodges.
Participants:
Participants were patients with cancer who travelled for treatment from rural and remote Queensland to major urban centres (n=518; age mean=64.6, SD=11.18).
Outcome measures:
Assessments included NCCI patient indicators, quality of life (QoL), psychological distress and unmet supportive care needs.
Results:
The frequency at which NCCI indicators were met ranged from 37.5% for receiving an assessment and care plan to 97.3% for understanding explanations about diagnosis. Geographical considerations did not impact patient experience, whereas middle school educated participants were more likely than those with senior-level education or higher to receive an assessment and care plan (OR=1.90, 95% CI 1.23 to 2.91) and to report having their views on treatment taken into account (OR=2.22, 95% CI 1.49 to 3.33). Patients with breast or prostate cancer reported better communication and patient involvement and information and services provision (r=p<0.001) compared with those with skin and head and neck cancer. When compared with information and service provision, communication and patient involvement showed stronger positive associations with QoL (z=2.03, p=0.042), psychosocial (z=2.05, p=0.040) and patient care (z=2.00, p=0.046) outcomes.
Conclusion:
The patient care experience varies across the NCCI indicators by sociodemographic and clinical factors that likely reflect healthcare system biases. Perceptions about communication and involvement appear most critical for optimal outcomes and should be a priority action area for cancer control.
Details
- Title
- Are National Cancer Control Indicators for patient experiences being met in regional and remote Australia? A cross-sectional study of cancer survivors who travelled for treatment
- Authors
- Jeff Dunn - Cancer Council QueenslandBelinda Goodwin (Corresponding Author) - Cancer Council QueenslandJoanne F Aitken - Cancer Council QueenslandSonja March - University of Southern QueenslandFiona Crawford-Williams - University of Southern QueenslandMichael Ireland - University of Southern QueenslandNicholas Ralph - University of Southern QueenslandLeah Zajdlewicz - Cancer Council QueenslandArlen Rowe - University of Southern QueenslandSuzanne K Chambers - University of Southern Queensland
- Publication details
- BMJ Open, Vol.11, pp.1-10
- Publisher
- BMJ Group
- Date published
- 2021
- DOI
- 10.1136/bmjopen-2020-042507
- ISSN
- 2044-6055
- PMID
- 33619187
- Copyright note
- © Author(s) (or their employer(s)) 2021. Re-use permitted under CC BY-NC. No commercial re-use. http://creativecommons.org/licenses/by-nc/4.0/ This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.
- Data Availability
- Data that support the findings of this study are available from the corresponding author upon reasonable request.
- Grant note
- The study was funded by The University of Southern Queensland and Cancer Council Queensland.
- Organisation Unit
- School of Health
- Language
- English
- Record Identifier
- 991087295102621
- Output Type
- Journal article
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