Valuing the voice of lived experience of eating disorders in the research process: Benefits and considerations

Selma Musić; Rosiel Elwyn; Grace Fountas; Inge Gnatt; Zoe M Jenkins; Amy Malcolm; Stephanie Miles; Erica Neill; Tamara Simpson; Caitlin Yolland; Andrea Phillipou

doi:10.1177/0004867421998794

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Valuing the voice of lived experience of eating disorders in the research process: Benefits and considerations

Journal article

Peer reviewed

Valuing the voice of lived experience of eating disorders in the research process: Benefits and considerations

Selma Musić, Rosiel Elwyn, Grace Fountas, Inge Gnatt, Zoe M Jenkins, Amy Malcolm, Stephanie Miles, Erica Neill, Tamara Simpson, Caitlin Yolland, …

Australian and New Zealand Journal of Psychiatry, Vol.56(3), pp.216-218

2022

DOI: https://doi.org/10.1177/0004867421998794

PMID: 33715452

Appears in Thompson Institute Research Collection

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Abstract

body image

peer worker

Eating disorder

anorexia nervosa

research

lived experience

Other Collaborations

Thompson Institute Special Collection

UniSC Diversity Area - Disability and Inclusion

Although the inclusion of individuals with lived experience is encouraged within the research process, there remains inconsistent direct involvement in many mental health fields. Within the eating disorders field specifically, there is a very strong and increasing presence of lived experience advocacy. However, due to a number of potential challenges, research undertaken in consultation or in collaboration with individuals with lived experience of an eating disorder is scarce. This paper describes the significant benefits of the inclusion of individuals with lived experience in research. The specific challenges and barriers faced in eating disorders research are also outlined. It is concluded that in addition to existing guidelines on working with lived experience collaborators in mental health research, more specific procedures are required when working with those with eating disorders.

Details

Title: Valuing the voice of lived experience of eating disorders in the research process: Benefits and considerations
Authors: Selma Musić (Author) - Swinburne University of Technology
Rosiel Elwyn (Author) - University of the Sunshine Coast, Queensland, Thompson Institute
Grace Fountas (Author) - Swinburne University of Technology
Inge Gnatt (Author) - Swinburne University of Technology
Zoe M Jenkins (Author) - Swinburne University of Technology
Amy Malcolm (Author) - Swinburne University of Technology
Stephanie Miles (Author) - Swinburne University of Technology
Erica Neill (Author) - Swinburne University of Technology
Tamara Simpson (Author) - Swinburne University of Technology
Caitlin Yolland (Author) - Swinburne University of Technology
Andrea Phillipou (Author) - Swinburne University of Technology
Publication details: Australian and New Zealand Journal of Psychiatry, Vol.56(3), pp.216-218
Publisher: Sage Publications Ltd.
Date published: 2022
DOI: 10.1177/0004867421998794
ISSN: 1440-1614
PMID: 33715452
Organisation Unit: University of the Sunshine Coast, Queensland; Thompson Institute; School of Law and Society; School of Health - Nursing
Language: English
Record Identifier: 99518306702621
Output Type: Journal article

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Collaboration types: Domestic collaboration
Web Of Science research areas: Psychiatry

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