Transition between paediatric and adult diabetes healthcare services: An online global survey of healthcare professionals’ experiences and perceptions

Steven James; Laura Cudizio; Sze May Ng; Sarah Lyons; Nisa M. Maruthur; Aleksandra Araszkiewicz; Apoorva Gomber; Frank Snoek; Eva Toft; Jill Weissberg-Benchell; Carine de Beaufort

doi:10.1016/j.diabres.2024.111768

Back

Transition between paediatric and adult diabetes healthcare services: An online global survey of healthcare professionals’ experiences and perceptions

Journal article

Peer reviewed

Transition between paediatric and adult diabetes healthcare services: An online global survey of healthcare professionals’ experiences and perceptions

Steven James, Laura Cudizio, Sze May Ng, Sarah Lyons, Nisa M. Maruthur, Aleksandra Araszkiewicz, Apoorva Gomber, Frank Snoek, Eva Toft, Jill Weissberg-Benchell, …

Diabetes Research and Clinical Practice, Vol.214, pp.1-8

2024

DOI: https://doi.org/10.1016/j.diabres.2024.111768

PMID: 38971378

Appears in UniSC Diversity and Inclusion Research Collection

Abstract

Guidelines

Low and middle-income

Technology

Transition

Type 1 diabetes

Youth

UniSC Diversity Area - Life Stages

Introduction Youth with diabetes should transition from paediatric to adult diabetes services in a deliberate, organized and cooperative way. We sought to identify healthcare professionals’ (HCPs) experiences and perceptions around transition readiness planning, policies and procedures, and the actual transfer to adult services. Methods Data were collected via an online global survey (seven language options), broadly advertised by the International Society for Pediatric and Adolescent Diabetes (ISPAD), European Association for the Study of Diabetes (EASD), team members and partners, via newsletters, websites, e-mails and social media. Results Respondents (n = 372) were mainly physicians (74.5 %), practicing in government funded (59.4 %), paediatric (54.0 %), metropolitan settings (85.8 %) in Europe (44.9 %); 37.1 % in low and middle-income countries (LMICs). Few centers used a transition readiness checklist (32.8 %), provided written transition information (29.6 %), or had a dedicated staff member (23.7 %). Similarly, few involved a psychologist (25.8 %), had combined (35.2 %) or transition/young person-only clinics (34.9 %), or a structured transition education program (22.6 %); 49.8 % advised youth to use technology to assist the transfer. Most (91.9 %) respondents reported barriers in offering a good transition experience. Proportionally, more respondents from LMICs prioritised more funding (p = 0.01), a structured protocol (p < 0.001) and education (p < 0.001). Conclusion HCPs’ experiences and perceptions related to transition vary widely. There is a pressing need for an international consensus transition guideline.

Details

Title: Transition between paediatric and adult diabetes healthcare services: An online global survey of healthcare professionals’ experiences and perceptions
Authors: Steven James (Corresponding Author) - University of the Sunshine Coast, Queensland, School of Health - Nursing
Laura Cudizio
Sze May Ng - Edge Hill University
Sarah Lyons - Baylor College of Medicine
Nisa M. Maruthur - Johns Hopkins Medicine
Aleksandra Araszkiewicz - Poznan University of Medical Sciences
Apoorva Gomber - Brigham and Women's Hospital
Frank Snoek - Vrije Universiteit Amsterdam
Eva Toft - Karolinska Institutet
Jill Weissberg-Benchell - Lurie Children's Hospital
Carine de Beaufort - Centre Hospitalier de Luxembourg
Publication details: Diabetes Research and Clinical Practice, Vol.214, pp.1-8
Publisher: Elsevier Ireland Ltd.
Date published: 2024
DOI: 10.1016/j.diabres.2024.111768
ISSN: 1872-8227
PMID: 38971378
Data Availability: Data are not available due to consent and ethical approval.
Organisation Unit: School of Health - Nursing
Language: English
Record Identifier: 991049697302621
Output Type: Journal article