Quality of Care in Inflammatory Bowel Disease: Actual Health Service Experiences Fall Short of the Standards

Antonina Mikocka‐Walus; Wayne Massuger; Simon R Knowles; Gregory T Moore; Stephanie Buckton; William Connell; Paul Pavli; Leanne Raven; Jane M Andrews

doi:10.1111/imj.14683

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Quality of Care in Inflammatory Bowel Disease: Actual Health Service Experiences Fall Short of the Standards

Journal article

Peer reviewed

Quality of Care in Inflammatory Bowel Disease: Actual Health Service Experiences Fall Short of the Standards

Antonina Mikocka‐Walus, Wayne Massuger, Simon R Knowles, Gregory T Moore, Stephanie Buckton, William Connell, Paul Pavli, Leanne Raven and Jane M Andrews

Internal Medicine Journal, Vol.50(10), pp.1216-1225

2020

DOI: https://doi.org/10.1111/imj.14683

PMID: 31707751

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Abstract

survey

inflammatory bowel disease standards

quality of care

inflammatory bowel disease

multidisciplinary care

Background: Quality of care in inflammatory bowel disease (IBD) has received much attention internationally; however, the available surveys focus on health professionals rather than patients. Aims: To assess the experiences of healthcare for people living with IBD against established Australian IBD Standards. Methods: An online cross‐sectional survey was conducted with Australians ≥16 years old recruited via Crohn's & Colitis Australia membership, public and private clinics and the Royal Flying Doctor Service. Participants completed a questionnaire incorporating items addressing the Australian IBD Standards 2016, the Picker Patient Experience Questionnaire, IBD Control Survey and the Manitoba Index. Results: Complete data were provided by 731 respondents (71.5% female, median age 46 years, ranging from 16 to 84 years). While the majority (74.8%) were satisfied with their IBD healthcare, the care reported did not meet the Australian IBD Standards. Overall, 32.4% had access to IBD nurses, 30.9% to a dietician and 12% to a psychologist in their treating team. Participants managed by public IBD clinics were most likely to have access to an IBD nurse (83.7%), helpline (80.7%) and research trials (37%). One third of respondents reported waiting >14 days to see a specialist when their IBD flared. Participants received enough information, mostly from medical specialists (88.8%) and IBD nurses (79.4%). However, 51% wanted to be more involved in their healthcare. Conclusions: These data show discordance between expectations of patients and national standards with current levels of service provision, which fail to deliver equitable and comprehensive IBD care.

Details

Title: Quality of Care in Inflammatory Bowel Disease: Actual Health Service Experiences Fall Short of the Standards
Authors: Antonina Mikocka‐Walus (Corresponding Author) - Deakin University
Wayne Massuger (Author) - Crohn's & Colitis Australia Melbourne Australia
Simon R Knowles (Author) - Swinburne University of Technology
Gregory T Moore (Author) - Monash University
Stephanie Buckton (Author) - Sunshine Coast University Hospital
William Connell (Author) - St Vincent's Hospital
Paul Pavli (Author) - Canberra Hospital
Leanne Raven (Author) - University of the Sunshine Coast, Queensland
Jane M Andrews (Author) - Royal Adelaide Hospital
Publication details: Internal Medicine Journal, Vol.50(10), pp.1216-1225
Publisher: Wiley-Blackwell Publishing Asia
DOI: 10.1111/imj.14683
ISSN: 1445-5994
PMID: 31707751
Organisation Unit: University of the Sunshine Coast, Queensland
Language: English
Record Identifier: 99485608602621
Output Type: Journal article

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Collaboration types: Domestic collaboration
Web Of Science research areas: Gastroenterology & Hepatology

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