Psychometric properties, and cultural appropriateness, of patient reported outcome measures for use in primary healthcare: a scoping review

Christopher M. Doran; Jamie Bryant; Erika Langham; Roxanne Bainbridge; Anthony Shakeshaft; Breanne Hobden; Sara Farnbach; Megan Freund

doi:10.1007/s11136-025-03956-5

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Psychometric properties, and cultural appropriateness, of patient reported outcome measures for use in primary healthcare: a scoping review

Journal article

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Psychometric properties, and cultural appropriateness, of patient reported outcome measures for use in primary healthcare: a scoping review

Christopher M. Doran, Jamie Bryant, Erika Langham, Roxanne Bainbridge, Anthony Shakeshaft, Breanne Hobden, Sara Farnbach and Megan Freund

Quality of Life Research, Vol.34(8), pp.2137-2149

2025

DOI: https://doi.org/10.1007/s11136-025-03956-5

PMID: 40153129

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Abstract

patient reported outcome measures

Review

primary health care

COSMIN

measurement properties

outcome measurement instruments

Purpose To critically appraise the psychometric properties and cultural appropriateness of self‐reported generic patient-reported outcome measures (PROMs) applicable for use in the primary healthcare setting using the Consensus Based Standards for the Selection of Health Measurement Instruments (COSMIN) guidelines. Methods PROMs were identified via a published systematic review and searches of relevant websites. PROMs were included if they were generic (i.e., outcome measures that assessed general aspects of health); had a maximum of 30 items; were applicable for use by all adult primary care patients; and were validated in English. Data was extracted regarding the characteristics of each PROM and the characteristics of included validation studies. The COSMIN risk of bias checklist was used to assess methodological quality and the revised COSMIN criteria was used to assess measurement properties. An evidence synthesis was conducted across studies using the guidelines from the modified Grading of Recommendations Assessment, Development and Evaluation approach for systematic reviews of clinical trials. Results 399 PROMs were identified and 19 met inclusion criteria. The included PROMs measured general health related quality of life (n = 8), outcomes or impact of care (n = 3), patient enablement, activation, and empowerment (n = 3), quality of care (n = 3), health and disability (n = 1), and functional status (n = 1). Six PROMs met the recommended COSMIN threshold for implementation. Conclusion Although six PROMs can be recommended for use in primary care, further psychometric testing is still required to strengthen evidence related to internal consistency, responsiveness and cross-cultural validity/measurement invariance. Selection of a PROM for routine clinical use in primary care also needs to be guided by the patient population.

Details

Title: Psychometric properties, and cultural appropriateness, of patient reported outcome measures for use in primary healthcare: a scoping review
Authors: Christopher M. Doran (Corresponding Author) - Central Queensland University
Jamie Bryant - Hunter Medical Research Institute
Erika Langham - The University of Queensland
Roxanne Bainbridge - The University of Queensland
Anthony Shakeshaft - The University of Queensland
Breanne Hobden - Hunter Medical Research Institute
Sara Farnbach - UNSW Sydney
Megan Freund - University of Newcastle Australia
Publication details: Quality of Life Research, Vol.34(8), pp.2137-2149
Publisher: Springer Dordrecht
Date published: 2025
DOI: 10.1007/s11136-025-03956-5
ISSN: 1573-2649
PMID: 40153129
Copyright note: This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/.
Data Availability: Data sharing is not applicable to this article as no datasets were generated or analysed during the current study.
Grant note: This work was supported by funding from Western Queensland Primary Care Collaborative Limited, Queensland, Australia.
Organisation Unit: School of Health - Psychology
Language: English
Record Identifier: 991241460802621
Output Type: Journal article

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