Protocol for the Yapatjarrathati project: a mixed-method implementation trial of a tiered assessment process for identifying fetal alcohol spectrum disorders in a remote Australian community

Dianne C Shanley; Erinn Hawkins; Marjad Page; Doug Shelton; Wei Liu; Heidi Webster; Karen M Moritz; Linda Barry; Jenny Ziviani; Shirley Morrissey; Frances O'Callaghan; Andrew Wood; Mary Katsikitis; Natasha Reid

doi:10.1186/s12913-019-4378-5

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Protocol for the Yapatjarrathati project: a mixed-method implementation trial of a tiered assessment process for identifying fetal alcohol spectrum disorders in a remote Australian community

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Protocol for the Yapatjarrathati project: a mixed-method implementation trial of a tiered assessment process for identifying fetal alcohol spectrum disorders in a remote Australian community

Dianne C Shanley, Erinn Hawkins, Marjad Page, Doug Shelton, Wei Liu, Heidi Webster, Karen M Moritz, Linda Barry, Jenny Ziviani, Shirley Morrissey, …

BMC Health Services Research, Vol.19, 649

2019

DOI: https://doi.org/10.1186/s12913-019-4378-5

PMCID: PMC6732837

PMID: 31500612

Appears in UniSC Diversity and Inclusion Research Collection

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Abstract

fetal alcohol spectrum disorder

developmental assessment

rural and remote areas

first nations

Indigenous communities

implementation strategy

Aboriginal and/or Torres Strait Islander peoples

UniSC Diversity Area - Disability and Inclusion

UniSC Diversity Area - Aboriginal and Torres Strait Islander Engagement

Fetal alcohol spectrum disorder (FASD) is a highly prevalent neurodevelopmental disorder associated with prenatal alcohol exposure. Early identification can improve functioning for individuals and reduce costs to society. Gold standard methods of diagnosing FASD rely on specialists to deliver intensive, multidisciplinary assessments. While comprehensive, prevalence rates highlight that this assessment model cannot meet demand, nor is it feasible in remote areas where specialist services are lacking. This project aims to expand the capabilities of remote practitioners in north Queensland, Australia, where 23-94% of the community identify as First Nations people. Integrating cultural protocols with the implementation science theories of Knowledge-To-Action, Experience-Based Co-Design, and RE-AIM, remote practitioners with varying levels of experience will be trained in a co-designed, culturally appropriate, tiered neurodevelopmental assessment process that considers FASD as a potential outcome. This innovative assessment process can be shared between primary and tertiary health care settings, improving access to services for children and families. This project aims to demonstrate that neurodevelopmental assessments can be integrated seamlessly with established community practices and sustained through evidence-based workforce development strategies.

Details

Title: Protocol for the Yapatjarrathati project: a mixed-method implementation trial of a tiered assessment process for identifying fetal alcohol spectrum disorders in a remote Australian community
Authors: Dianne C Shanley (Author) - Griffith University
Erinn Hawkins (Author) - Griffith University
Marjad Page (Author) - North West Hospital and Health Service
Doug Shelton (Author) - Gold Coast Hospital
Wei Liu (Author) - Griffith University
Heidi Webster (Author) - Sunshine Coast Health Services
Karen M Moritz (Author) - University of Queensland
Linda Barry (Author) - Centre for Children's Health Research
Jenny Ziviani (Author) - University of Queensland
Shirley Morrissey (Author) - Griffith University
Frances O'Callaghan (Author) - Griffith University
Andrew Wood (Author) - University of the Sunshine Coast
Mary Katsikitis (Author) - University of the Sunshine Coast
Natasha Reid (Author) - Griffith University
Publication details: BMC Health Services Research, Vol.19, 649; 11
Publisher: BioMed Central Ltd.
Date published: 2019
DOI: 10.1186/s12913-019-4378-5
ISSN: 1472-6963
PMID: 31500612; PMC6732837
Copyright note: Copyright © The Author(s). 2019 Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
Organisation Unit: School of Social Sciences - Legacy; University of the Sunshine Coast, Queensland; School of Health - Psychology; School of Health and Behavioural Sciences - Legacy
Language: English
Record Identifier: 99451487502621
Output Type: Journal article

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