Journal article
Patients describe their lived experiences of battling to live with Complex Regional Pain Syndrome
Journal of Pain, Vol.22(9), pp.1111-1128
2021
Abstract
Complex regional pain syndrome (CRPS) has never comprehensively been examined from a lived experience perspective. Patients generally have a poorer quality of life than people with other chronic pain conditions. This study aimed to understand the essence of living with CRPS. Data were collected from 17 patients via in-depth interviews. Hermeneutic discussions with four health professionals generated deeper insights. Internet blogs and a book containing patient stories were included for theme verification and triangulation. CRPS is seen as a war-like experience and five themes were identified within the battle: "dealing with the unknown enemy", "building an armoury against a moving target", "battles within the war", "developing battle plans with allies" and "warrior or prisoner of war". Patients live with a chronic pain condition and experience problems unique to CRPS such as fear of pain extending to other parts of their body. Use of the model generated by this research may assist patient/clinician interactions and guide therapeutic discussions. Support for people living with CRPS does not always exist, and some healthcare professionals require additional education about the condition. Better health outcomes are experienced by patients when their personal situation and experiences are heard and understood by health care professionals.
Details
- Title
- Patients describe their lived experiences of battling to live with Complex Regional Pain Syndrome
- Authors
- Colleen Johnston-Devin (Author) - University of the Sunshine Coast, Queensland, School of Health and Sport Sciences - LegacyFlorin Oprescu (Author) - University of the Sunshine CoastMarion Gray (Author) - University of the Sunshine Coast, Queensland, School of Health and Sport Sciences - LegacyMarianne Wallis (Author) - University of the Sunshine Coast, Queensland, School of Nursing, Midwifery and Paramedicine - Legacy
- Publication details
- Journal of Pain, Vol.22(9), pp.1111-1128
- Publisher
- Churchill Livingstone
- Date published
- 2021
- DOI
- 10.1016/j.jpain.2021.03.151
- ISSN
- 1528-8447
- Copyright note
- © 2021 The Author(s). Published by Elsevier Inc. on behalf of United States Association for the Study of Pain, Inc. This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/)
- Organisation Unit
- University of the Sunshine Coast, Queensland; School of Health and Sport Sciences - Legacy; School of Nursing, Midwifery and Paramedicine - Legacy; Engage Research Lab; School of Health and Behavioural Sciences - Legacy; School of Health - Public Health
- Language
- English
- Record Identifier
- 99526507502621
- Output Type
- Journal article
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- Collaboration types
- Domestic collaboration
- Web Of Science research areas
- Clinical Neurology
- Neurosciences
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Source: InCites