Files and links (2)
Patient involvement in preparing health research peer-reviewed publications or results summaries_ a systematic review and evidence-based recommendations691.80 kB
Published VersionCC BY V4.0, Open Access
Journal article
Patient involvement in preparing health research peer-reviewed publications or results summaries: a systematic review and evidence-based recommendations
Research Involvement and Engagement, Vol.6(1), pp.1-14
2020
Abstract
Background: There are increasing calls for patient involvement in sharing health research results, but no evidence-based recommendations to guide such involvement. Our objectives were to: (1) conduct a systematic review of the evidence on patient involvement in results sharing, (2) propose evidence-based recommendations to help maximize benefits and minimize risks of such involvement and (3) conduct this project with patient authors. Methods: To avoid research waste, we verified that no systematic reviews were registered or published on this topic. We co-created, with patients, a PRISMA-P–compliant protocol. We included peer-reviewed publications reporting the effects of patient involvement in preparing peer-reviewed publications or results summaries from health research studies. We searched (9/10/2017) MEDLINE, EMBASE and the Cochrane Database of Systematic Reviews, and secondary information sources (until 11/06/2018). We assessed the risk of bias in eligible publications and extracted data using standardized processes. To evaluate patient involvement in this project, we co-created a Patient Authorship Experience Tool.
Details
- Title
- Patient involvement in preparing health research peer-reviewed publications or results summaries: a systematic review and evidence-based recommendations
- Authors
- Lauri Arnstein (Author) - Envision Pharma GroupAnne Clare Wadsworth (Author) - Envision Pharma GroupBeverley Anne Yamamoto (Author) - The University of OsakaRichard Stephens (Author) - National Cancer Research InstituteKawaldip Sehmi (Author) - International Alliance of Patients’ Organizations, London, UKRachel Jones (Author) - Swii.ch Health, Manchester, UKArabella Sargent (Author) - Envision Pharma GroupThomas Gegeny (Author) - Envision Pharma GroupKaren Woolley (Author) - University of the Sunshine Coast, Queensland, School of Health and Sport Sciences - Legacy
- Publication details
- Research Involvement and Engagement, Vol.6(1), pp.1-14
- Publisher
- BioMed Central
- Date published
- 2020
- DOI
- 10.1186/s40900-020-00190-w
- ISSN
- 2056-7529; 2056-7529
- Copyright note
- Copyright © The Author(s). 2020 Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
- Organisation Unit
- University of the Sunshine Coast, Queensland; School of Health and Sport Sciences - Legacy
- Language
- English
- Record Identifier
- 99469907702621
- Output Type
- Journal article
Metrics
25 File views/ downloads
60 Record Views