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Published VersionCC BY-NC-ND V4.0, Open Access
Journal article
Lived experiences of adolescents with fetal alcohol spectrum disorder
Developmental Medicine and Child Neurology, Vol.64(12), pp.1547-1555
2022
PMID: 35637620
Abstract
Aim:
To explore the lived experiences of adolescents with fetal alcohol spectrum disorder (FASD) to understand: the ways in which their challenges influence daily functioning; and the personal assets and external resources that facilitate participation.
Method:
Semi-structured interviews were conducted with four adolescents (one identified as non-binary, one male, and two female) with FASD aged 13 to 15 years. A photo elicitation approach facilitated participation, whereby adolescents first took photographs of their daily activities and environments. Photographs were subsequently used to generate discussion during the interviews. Data analysis involved using interpretative phenomenological analysis to generate themes.
Results:
Two superordinate themes and three subthemes relating to participants' lived experiences emerged from the interviews: (1) ‘anxiety challenges participation’ (subthemes [i] ‘need for external support’; [ii] ‘the power of positive relationships’; and [iii] ‘talents and interests facilitate participation’) and (2) ‘importance of a unique identity’.
Interpretation:
Findings illustrated the barriers adolescents experienced regarding their daily functioning and independence. Additionally, incorporating strengths into daily activities appeared to reduce anxiety and improve participation, and adolescents desired for their unique characteristics to be recognized and appreciated. To support adolescents with FASD, service providers should consider incorporating strengths-based approaches and an explicit focus on facilitating the development of positive self-identities.
Details
- Title
- Lived experiences of adolescents with fetal alcohol spectrum disorder
- Authors
- Kelly Skorka (Corresponding Author) - The University of QueenslandJodie Copley (Author) - The University of QueenslandCatherine McBryde (Author) - The University of QueenslandPamela Meredith (Author) - University of the Sunshine Coast, Queensland, School of Health and Behavioural Sciences - LegacyNatasha Reid (Author) - The University of Queensland
- Publication details
- Developmental Medicine and Child Neurology, Vol.64(12), pp.1547-1555
- Publisher
- Wiley-Blackwell Publishing Ltd.
- Date published
- 2022
- DOI
- 10.1111/dmcn.15290
- ISSN
- 1469-8749; 0012-1622
- PMID
- 35637620
- Copyright note
- © 2022 The Authors. Developmental Medicine & Child Neurology published by John Wiley & Sons Ltd on behalf of Mac Keith Press. This is an open access article under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non-commercial and no modifications or adaptations are made.
- Organisation Unit
- University of the Sunshine Coast, Queensland; School of Health - Occupational Therapy; Cancer Research Cluster; School of Health and Behavioural Sciences - Legacy
- Language
- English
- Record Identifier
- 99643178502621
- Output Type
- Journal article
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- Domestic collaboration
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- Clinical Neurology
- Pediatrics
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