Files and links (1)
Published VersionCC BY-NC-ND V4.0, Open Access
Journal article
Learning to work together: experiences of researchers and family partners in a patient-oriented research team
Research Involvement and Engagement, Vol.11, pp.1-9
2025
PMID: 40312747
Abstract
Background
The BetterLTC research team holds ten years of experience conducting patient-oriented research. We are an intergenerational multicultural patient-oriented research team. Our team comprises researchers, clinicians, trainees, and family partners (experts by lived experience).
Main text
In this commentary, we come together to share our experiences as researchers and family partners: what we think about and how we live patient-oriented research. We recorded and explored our experiences from the ground up. We came together to thematically analyze our recordings, and we encountered themes within our conversations. From our shared experiences, we make visible the common themes of balancing diverse expectations, raising the voice of diverse experiences, and valuing relationship building. As a team, we have encountered challenges within the academic culture of high productivity expectations. We navigate challenges by acknowledging the diverse expectations within the team and valuing each person`s perspectives and our time together for relationship building.
Conclusion
We learned that patient-oriented research is more than following policies and guidelines for engaging family partners; it is a way of being in the world that cultivates curiosity and openness to surprise.
Details
- Title
- Learning to work together: experiences of researchers and family partners in a patient-oriented research team
- Authors
- Mariana D S Ribeiro - University of SaskatchewanRoslyn M Compton (Corresponding Author) - University of the Sunshine Coast, Queensland, School of HealthKatherine M Ottley - University of SaskatchewanMarilyn BarlowAlison Craswell - University of the Sunshine Coast, Queensland, School of Health - NursingShawn Emard - Saskatchewan Indian Institute of Technologies (Canada)Jane McPheeMarlene Moorman
- Publication details
- Research Involvement and Engagement, Vol.11, pp.1-9
- Publisher
- BioMed Central Ltd.
- Date published
- 2025
- DOI
- 10.1186/s40900-025-00717-z
- ISSN
- 2056-7529
- PMID
- 40312747
- Copyright note
- This article is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License, which permits any non-commercial use, sharing, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if you modified the licensed material. You do not have permission under this licence to share adapted material derived from this article or parts of it. The images or other third party material in this article are included in the article’s Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by-nc-nd/4.0/.
- Data Availability
- No datasets were generated or analysed during the current study.
- Organisation Unit
- Healthy Ageing Research Cluster; School of Health; School of Health - Nursing
- Language
- English
- Record Identifier
- 991127006202621
- Output Type
- Journal article
Metrics
48 Record Views