Initial validation of a needs instrument for young people bereaved by familial cancer

Pandora Patterson; Fiona E. J McDonald; Daniel S. J Costa; Richard Tindle; Kimberley R Allison; Sue E Morris

doi:10.1007/s00520-019-05104-5

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Initial validation of a needs instrument for young people bereaved by familial cancer

Journal article

Peer reviewed

Initial validation of a needs instrument for young people bereaved by familial cancer

Pandora Patterson, Fiona E. J McDonald, Daniel S. J Costa, Richard Tindle, Kimberley R Allison and Sue E Morris

Supportive Care in Cancer, Vol.28, pp.3637-3648

2020

DOI: https://doi.org/10.1007/s00520-019-05104-5

PMID: 31811484

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Abstract

adolescent and young adult

bereavement

distress

familial cancer

unmet needs

validation

Objective: This study aimed to validate the Bereaved Cancer Needs Instrument (BCNI), an instrument designed to assess the unmet psychosocial needs of adolescents and young adults (AYAs, 12–25 years) who have experienced the death of a parent or sibling to cancer. Methods: In total, 335 participants aged 12 to 25 (M = 15.80, SD = 3.32) who had experienced the death of a parent (N = 297) or sibling (N = 38) from cancer took part in this study. Participants completed the BCNI, the Kessler-10 psychological distress scale (K10), and several items assessing the acceptability of the BCNI. Results: Exploratory factor analysis indicated that a seven-factor structure best fit the BCNI, accounting for 56.65% of the variance in unmet psychosocial needs of cancer-bereaved AYAs. The measure had good psychometric properties, high levels of internal consistency for all domains, and correlated strongly with the K10 (r = .59, p < .001). Item response theory analysis demonstrated that the response scale was appropriate, with strong discrimination indices. Analyses also indicated the potential to reduce the BCNI from 58 items to a 37-item short-form, although this will require further validation. Conclusions: The BCNI is the first psychometrically validated instrument to identify the unmet psychosocial needs of bereaved AYAs who have experienced the death of a parent or sibling to cancer. The instrument can be used in research and health care settings to identify the unmet needs of young people bereaved by cancer and provide targeted support to reduce psychological distress.

Details

Title: Initial validation of a needs instrument for young people bereaved by familial cancer
Authors: Pandora Patterson (Corresponding Author) - Canteen
Fiona E. J McDonald (Author) - Canteen
Daniel S. J Costa (Author) - University of Sydney
Richard Tindle (Author) - Canteen
Kimberley R Allison (Author) - Canteen
Sue E Morris (Author) - Dana-Farber Cancer Institute
Publication details: Supportive Care in Cancer, Vol.28, pp.3637-3648
Publisher: Springer
DOI: 10.1007/s00520-019-05104-5
ISSN: 1433-7339
PMID: 31811484
Organisation Unit: Indigenous and Transcultural Research Centre; School of Health and Behavioural Sciences - Legacy; University of the Sunshine Coast, Queensland
Language: English
Record Identifier: 99557708202621
Output Type: Journal article

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Collaboration types: Domestic collaboration; International collaboration
Web Of Science research areas: Health Care Sciences & Services; Oncology; Rehabilitation

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