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Identifying strategic research priorities of stakeholders for fetal alcohol spectrum disorder in Aotearoa1.78 MB
Published VersionCC BY-NC-ND V4.0, Open Access
Journal article
Identifying strategic research priorities of stakeholders for fetal alcohol spectrum disorder in Aotearoa
Journal of the Royal Society of New Zealand, Vol.55(1), pp.82-97
2025
PMID: 39649670
Abstract
Fetal alcohol spectrum disorder (FASD) is under-researched in Aotearoa New Zealand (NZ). There is a pressing need to establish a research agenda that is aligned with Te Tiriti o Waitangi and relevant to both stakeholders and end-users, to improve the outcomes and support for people affected by FASD. We conducted hui and interviews to identify consensus on research priorities among key stakeholders for FASD in NZ, including whānau and caregivers, health care workers, educators, academics and clinicians. The hui focused on three main topics: prevention; assessment and diagnosis; and intervention. Hui transcripts were analysed to identify priorities. Once the research questions or priorities were identified we sent a follow-up survey to participants asking them to rate each research question on their importance and relevance. Four hui and ten interviews (n = 52) were conducted across the North Island between April and July 2021. We identified 20 research priorities from the hui and interviews. Based on participant feedback (n = 18), the most important and relevant priority was: ‘What can we do to encourage success for people with FASD throughout their lives?’. The priorities identified through the workshops and hui will be valuable in guiding future research and policies relating to FASD.
Details
- Title
- Identifying strategic research priorities of stakeholders for fetal alcohol spectrum disorder in Aotearoa
- Authors
- Joanna T. W. Chu (Corresponding Author) - University of AucklandJanell Dymus-Kurei - Hāpai Te Hauora | Māori Public Health (New Zealand)Jessica C. McCormack - University of AucklandAndre D. McLachlan - Te Rau Ora (New Zealand)Samantha Marsh - University of AucklandHolly Wilson - University of AucklandDavid Newcombe - University of Auckland
- Publication details
- Journal of the Royal Society of New Zealand, Vol.55(1), pp.82-97
- Publisher
- Taylor & Francis Asia Pacific (Singapore)
- Date published
- 2025
- DOI
- 10.1080/03036758.2023.2241847
- ISSN
- 1175-8899; 0303-6758
- PMID
- 39649670
- Copyright note
- © 2023 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives License (http://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited, and is not altered, transformed, or built upon in any way. The terms on which this article has been published allow the posting of the Accepted Manuscript in a repository by the author(s) or with their consent.
- Grant note
- This work was supported by the Health Research Council of New Zealand Activation Grant.
- Organisation Unit
- School of Health - Psychology
- Language
- English
- Record Identifier
- 991195439802621
- Output Type
- Journal article
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