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How might diabetes organisations address diabetes-related stigma - Findings from a deliberative democratic case study VoR373.31 kB
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Journal article
How might diabetes organisations address diabetes-related stigma? Findings from a deliberative democratic case study
Health Expectations, Vol.25(5), pp.2213-2222
2022
PMID: 34856048
Abstract
Introduction: This study sought to identify how diabetes organisations conceptualize the problem of diabetes-related stigma and how this shapes the selection of stigma-reduction interventions. Methods: A qualitative deliberative democratic methodology was used to access an informed dialogue about what should be done by diabetes organisations to address diabetes-related stigma, drawing from the perspectives of board members, healthcare services staff, and communications and marketing staff from a single state-wide diabetes organisation in Australia (n = 25). Results: Participants navigated the stigma concept along two axes: one that drew attention to either disease attributes or personal moral attributes as the object of stigmatisation, and one that positioned stigma as an individual or structural problem. This shaped the selection of stigma-reduction interventions, which included interventions to: (i) reduce the prevalence of stigmatized attributes, (ii) correct misunderstandings about diabetes, (iii) modify representations of persons with diabetes, (iii) enhance coping amongst persons with diabetes and (iv) make healthcare more person-centred and democratic. Conclusion: This study identified several grievances with 'diabetes-related stigma', which are grievances that can be conceptualized and addressed at both individual and structural levels, and involve correcting misinformation about diabetes or challenging and communicating alternative representations of persons living with diabetes. Patient or Public Contribution: The organisation's management and board were consulted throughout all stages of research development, analysis and reporting. The information and vignettes presented to participants drew from illness narratives obtained from earlier research involving adults with type 2 diabetes. Research participants included adults with various diabetes types.
Details
- Title
- How might diabetes organisations address diabetes-related stigma? Findings from a deliberative democratic case study
- Authors
- Heath Pillen (Author) - Flinders UniversityPaul R. Ward (Author) - Flinders Univ S Australia, Coll Med & Publ Hlth, Discipline Publ Hlth, Bedford Pk, SA, Australia
- Publication details
- Health Expectations, Vol.25(5), pp.2213-2222
- Publisher
- Wiley-Blackwell Publishing Ltd.
- Date published
- 2022
- DOI
- 10.1111/hex.13398
- ISSN
- 1369-7625; 1369-6513
- PMID
- 34856048
- Copyright note
- © 2021 The Authors.Health Expectations published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium,provided the original work is properly cited.
- Grant note
- Australian Government Department of Education and Training; Australian Government; Department of Industry, Innovation and Science Diabetes South Australia
- Organisation Unit
- University of the Sunshine Coast, Queensland; School of Health and Behavioural Sciences - Legacy; School of Health - Public Health
- Language
- English
- Record Identifier
- 99665898202621
- Output Type
- Journal article
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