Home as a place of caring and wellbeing? A qualitative study of informal carers and caring networks lived experiences of providing in-home end-of-life care

D Horsfall; R Leonard; John P Rosenberg; K Noonan

doi:10.1016/j.healthplace.2017.04.003

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Home as a place of caring and wellbeing? A qualitative study of informal carers and caring networks lived experiences of providing in-home end-of-life care

Journal article

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Home as a place of caring and wellbeing? A qualitative study of informal carers and caring networks lived experiences of providing in-home end-of-life care

D Horsfall, R Leonard, John P Rosenberg and K Noonan

Health and Place, Vol.46, pp.58-64

2017

DOI: https://doi.org/10.1016/j.healthplace.2017.04.003

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Abstract

Although the burden of caring is well described, the value of home as a potential place of wellbeing and support for informal caring networks when providing end-of-life care is not well recognised. Interviews and focus groups with 127 primary carers and members of informal care networks revealed their collaborative stories about caring for a dying person at home. Four themes emerged from the data: home as a place of comfort and belonging; places of social connection and collaborative caring; places of connection to nature and the non-human; places of achievement and triumph. When support is available, nurturing carer wellbeing may be best achieved at home.

Details

Title: Home as a place of caring and wellbeing? A qualitative study of informal carers and caring networks lived experiences of providing in-home end-of-life care
Authors: D Horsfall (Author) - Western Sydney University
R Leonard (Author) - Western Sydney University
John P Rosenberg (Author) - Queensland University of Technology
K Noonan (Author) - Western Sydney University
Publication details: Health and Place, Vol.46, pp.58-64
Publisher: Pergamon
Date published: 2017
DOI: 10.1016/j.healthplace.2017.04.003
ISSN: 1353-8292
Organisation Unit: School of Health - Nursing; University of the Sunshine Coast, Queensland; School of Nursing, Midwifery and Paramedicine - Legacy
Language: English
Record Identifier: 99450649802621
Output Type: Journal article

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Collaboration types: Domestic collaboration
Web Of Science research areas: Public, Environmental & Occupational Health

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