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Journal of Advanced Nursing - 2023 - Reid - Development and testing of a patient‐reported experience measure for cancer A981.23 kB
Published VersionCC BY-NC V4.0, Open Access
Journal article
Development and testing of a patient-reported experience measure for cancer: A cross-sectional survey
Journal of Advanced Nursing, Vol.80(1), pp.312-327
2024
Appears in UniSC Supported Open Access Outputs
Abstract
Aim:
To develop and psychometrically test the Patient-reported Experience Measure-Cancer (PREM-C), reflecting patients' perceptions of cancer care experiences according to the Institute of Medicine domains.
Design:
A three-phase cross-sectional survey was conducted.
Methods:
Development, reliability and validity testing of the PREM-C measure was undertaken. Data collection included three phases: firstly (development) between October and November, 2015; secondly (psychometric testing), May 2016–June, 2017, and finally, (revision and psychometric testing) May 2019–March 2020.
Results:
The final PREM-C structure, created using the Institute of Medicine domains, was psychometrically sound with five factors identified in the Exploratory Factor Analysis, demonstrating internal reliability ranging from 0.8 to 0.9. Confirmatory Factor Analysis indicated the hypothesized model fitted well (Root mean square error of approximation = 0.076). External convergent and divergent validity was established with the PREM-C found to be moderately correlated with the Picker Patient Experience Questionnaire but weakly correlated with the WHOQoL-BREF.
Conclusion:
The development and testing of the PREM-C demonstrated good fit as a clinically relevant measure of ambulatory cancer patients' experiences of care. To make meaningful changes to nursing practice and health services, patient experience measures such as the PREM-C might support staff to identify areas for service improvement.
Impact:
Few reliable measures and less validated measures collect patients' perceptions of the quality of their healthcare provision. Rigorous psychometric testing of the newly developed PREM-C demonstrated good internal consistency, test–retest reliability, and external convergent and divergent validity. The PREM-C is a potentially relevant measure of cancer patients' experiences of care. It might be used to assess patient-centred care and guide safety and quality improvements in clinical settings. PREM-C use might inform service providers of experiences of care in their institution and inform policy and practice development. This measure is sufficiently generic, allowing potential use in other chronic disease populations.
Patient or Public Contribution:
This conduct of this study was supported by the participating patients of the hospital Cancer Outpatients Service.
Details
- Title
- Development and testing of a patient-reported experience measure for cancer: A cross-sectional survey
- Authors
- Carol Reid (Corresponding Author) - University of the Sunshine Coast, Queensland, School of Nursing, Midwifery and Paramedicine - LegacyLee Jones (Author) - Queensland University of TechnologyMonika Janda (Author) - The University of QueenslandDanette H Langbecker (Author) - The University of QueenslandLeanne Stone (Author) - Princess Alexandra HospitalBobbi Laing (Author) - University of AucklandAlexandra L McCarthy (Author) - Mater Research
- Publication details
- Journal of Advanced Nursing, Vol.80(1), pp.312-327
- Publisher
- Wiley-Blackwell Publishing Ltd.
- Date published
- 2024
- DOI
- 10.1111/jan.15767
- ISSN
- 1365-2648; 0309-2402
- Copyright note
- © 2023 The Authors. Journal of Advanced Nursing published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution-NonCommercial License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.
- Organisation Unit
- School of Nursing, Midwifery and Paramedicine - Legacy
- Language
- English
- Record Identifier
- 99740698702621
- Output Type
- Journal article
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