Journal article
Developing a values-based interorganisational Care at the End-of-Life Collaborative framework for the Australian context: A mixed-methods, practice-based research protocol
Palliative Care and Social Practice, Vol.19, pp.1-10
2025
PMCID: PMC12062592
PMID: 40352585
Appears in Cancer Research Cluster Research Collection
Abstract
Background:
As the population ages and the demand for quality care at the end of life increases, health costs are increasing, thus creating a perfect storm of need, outstripping the supply of palliative care services. Engaging communities to support care at the end of life through the establishment of values-based interorganisational Care at the End-of-Life Collaboratives is one approach to addressing this problem. Whilst there is an abundance of literature about collaboratives, understanding of those supporting care at the end of life is lacking.
Objectives:
The objectives of this research are to understand the contextual factors using an evaluation framework that support the success of values-based interorganisational Care at the End-of-Life Collaboratives to achieve system improvements at a regional level and develop a framework for establishing sustainable Care at the End-of-Life Collaboratives in jurisdictions across Australia.
Design:
This is a two-phase study that uses a mixed-methods case study and a Delphi methodology.
Methods and analysis:
Phase I data collection is based on the RE-AIM framework, which uses the Partnership Self-Assessment Tool (PSAT) and semi-structured interviews with Collaborative members and key stakeholders. A review of collaborative documentation, including meeting minutes and reports, will also be completed. Phase II will include a minimum of two surveys of the expert group recruited from the peak palliative care bodies across Australia. Quantitative data in this study will be analysed using descriptive statistics and frequency distributions. A reflexive approach to content analysis of qualitative data will be adopted.
Ethics:
This research is approved by the University of Southern Queensland Human Research Ethics Committee (approval ETH2023-0718).
Discussion:
Understanding the contextual factors that contribute to the sustainability of an existing Care at the End-of-Life Collaborative within Australia will enable the foundation of a framework for developing similar collaboratives, for refinement through expert consensus using Delphi methodology.
Details
- Title
- Developing a values-based interorganisational Care at the End-of-Life Collaborative framework for the Australian context: A mixed-methods, practice-based research protocol
- Authors
- Carol Hope (Corresponding Author) - University of Southern QueenslandLeah East - University of Southern QueenslandJohn Rosenberg - University of the Sunshine Coast, Queensland, School of Health - NursingMelissa Taylor - University of Southern Queensland
- Publication details
- Palliative Care and Social Practice, Vol.19, pp.1-10
- Publisher
- Sage Publications Ltd.
- Date published
- 2025
- DOI
- 10.1177/26323524251337491
- ISSN
- 2632-3524
- PMID
- 40352585; PMC12062592
- Copyright note
- © The Author(s) 2025. This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
- Data Availability
- Not applicable due to this manuscript being a protocol.
- Organisation Unit
- Healthy Ageing Research Cluster; School of Health - Nursing; Cancer Research Cluster
- Language
- English
- Record Identifier
- 991134405802621
- Output Type
- Journal article
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