Developing a death literacy index

Rosemary Leonard; Kerrie Noonan; Debbie Horsfall; Marguerite Kelly; John P Rosenberg; Andrea Grindrod; Bruce Rumbold; Alison Rahn

doi:10.1080/07481187.2021.1894268

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Journal article

Peer reviewed

Developing a death literacy index

Rosemary Leonard, Kerrie Noonan, Debbie Horsfall, Marguerite Kelly, John P Rosenberg, Andrea Grindrod, Bruce Rumbold and Alison Rahn

Death Studies, Vol.46(9), pp.2110-2122

2021

DOI: https://doi.org/10.1080/07481187.2021.1894268

PMID: 34152939

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Abstract

Performing end-of-life care can be a catalyst for developing a capacity called death literacy. This study aimed to develop a comprehensive and useable measure of death literacy that has the potential to assess interventions with individuals, communities, and societies. Using a mixed methods approach, a Death Literacy Index was developed from personal narratives and input from practitioners and experts. Refined on a sample of 1330 Australians using exploratory and confirmatory factor analysis and structural equation modeling, a 29-item Death Literacy Index was found to be reliable and demonstrated construct validity. Further studies are needed to test predictive validity.

Details

Title: Developing a death literacy index
Authors: Rosemary Leonard (Corresponding Author) - Western Sydney University
Kerrie Noonan (Author) - Western Sydney University
Debbie Horsfall (Author) - Western Sydney University
Marguerite Kelly (Author) - Western Sydney University
John P Rosenberg (Author) - University of the Sunshine Coast, Queensland, School of Nursing, Midwifery and Paramedicine - Legacy
Andrea Grindrod (Author) - La Trobe University
Bruce Rumbold (Author) - La Trobe University
Alison Rahn (Author) - Western Sydney University
Publication details: Death Studies, Vol.46(9), pp.2110-2122
Publisher: Routledge
Date published: 2021
DOI: 10.1080/07481187.2021.1894268
ISSN: 1091-7683
PMID: 34152939
Grant note: J.O. & J.R. Wicking Trust (The Wicking Trust) Groundswell Project
Organisation Unit: School of Health - Nursing; University of the Sunshine Coast, Queensland; Cancer Research Cluster; School of Nursing, Midwifery and Paramedicine - Legacy
Language: English
Record Identifier: 99548408002621
Output Type: Journal article

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Collaboration types: Domestic collaboration
Web Of Science research areas: Psychology, Multidisciplinary; Social Issues; Social Sciences, Biomedical

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