Dementia and its influence on quality of life and what it means to be valued: Family members' perceptions

W Moyle; J Murfield; L Venturto; S Griffiths; P Grimbeek; Margaret McAllister; J Marshall

doi:10.1177/1471301212474147

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Dementia and its influence on quality of life and what it means to be valued: Family members' perceptions

Journal article

Peer reviewed

Dementia and its influence on quality of life and what it means to be valued: Family members' perceptions

W Moyle, J Murfield, L Venturto, S Griffiths, P Grimbeek, Margaret McAllister and J Marshall

Dementia, Vol.13(3), pp.412-425

2014

DOI: https://doi.org/10.1177/1471301212474147

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Abstract

dementia

family

long-term care

quality of life

relationships

This pragmatic, exploratory qualitative study, as part of a larger funded research project, sought to explore families' perspectives on what it means to value a person with dementia and how this value might influence the quality of life of people with dementia. In-depth interviews were conducted with 20 family members who used one long-term care service provider in Australia. Families described the factors influencing a positive quality of life for the person with dementia as being related to the environment and, in particular, to the resident's room, supportive staff and individualised care that valued the person's life experience. Family also reported a negative impact on quality of life when staff and the care facility neglected to provide an individualised approach. This study highlights the importance of demonstrating the value of the person with dementia, the family role and partnerships of care. © The Author(s) 2013 Reprints and permissions: sagepub.co.uk/journalsPermissions.nav.

Details

Title: Dementia and its influence on quality of life and what it means to be valued: Family members' perceptions
Authors: W Moyle (Author) - Research Centre for Clinical and Community Practice Innovation
J Murfield (Author) - Research Centre for Clinical and Community Practice Innovation
L Venturto (Author) - Research Centre for Clinical and Community Practice Innovation
S Griffiths (Author) - Research Centre for Clinical and Community Practice Innovation
P Grimbeek (Author) - Research Centre for Clinical and Community Practice Innovation
Margaret McAllister (Author) - University of the Sunshine Coast - Faculty of Science, Health, Education and Engineering
J Marshall (Author) - RSL Care
Publication details: Dementia, Vol.13(3), pp.412-425
Publisher: Sage Publications Ltd.
Date published: 2014
DOI: 10.1177/1471301212474147
ISSN: 1471-3012
Organisation Unit: University of the Sunshine Coast, Queensland
Language: English
Record Identifier: 99450805902621
Output Type: Journal article

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Collaboration types: Domestic collaboration
Web Of Science research areas: Gerontology

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