Contrasting perspectives of parents and service providers on respite care in Queensland, Australia

Cynthia Teo; Ann Kennedy-Behr; John B Lowe

doi:10.1080/09687599.2018.1491390

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Contrasting perspectives of parents and service providers on respite care in Queensland, Australia

Journal article

Open access

Peer reviewed

Contrasting perspectives of parents and service providers on respite care in Queensland, Australia

Cynthia Teo, Ann Kennedy-Behr and John B Lowe

Disability & Society, Vol.33(9), pp.1503-1527

2018

DOI: https://doi.org/10.1080/09687599.2018.1491390

Appears in UniSC Diversity and Inclusion Research Collection

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Abstract

intellectual disability

autism

respite

disability support worker

family-centred

person-centred

UniSC Diversity Area - Disability and Inclusion

UniSC Diversity Area - Life Stages

Parent-carers need support to continue to care for their child with significant disability in their home. There has, however, been little evidence that respite interventions have consistent or enduring beneficial effects on carer well-being. This article reports the findings of a qualitative study which adopted an Appreciative Inquiry philosophy to interview parent-carers of children with significant intellectual and/or developmental disabilities on how formal support services have helped them maintain their health and well-being, and disability support staff on how they help such parent-carers foster their health and well-being. We conclude that better communication and collaboration between service providers and users, more targeted training of workers, and embracing a person-centred and family-centred approach to respite services are needed. In addition, clearer definition and communication of the scope of respite services are required to best support families of children with significant disability in their home.

Details

Title: Contrasting perspectives of parents and service providers on respite care in Queensland, Australia
Authors: Cynthia Teo (Author) - University of the Sunshine Coast - Faculty of Science, Health, Education and Engineering
Ann Kennedy-Behr (Author) - University of the Sunshine Coast - Faculty of Science, Health, Education and Engineering
John B Lowe (Author) - University of the Sunshine Coast - Faculty of Science, Health, Education and Engineering
Publication details: Disability & Society, Vol.33(9), pp.1503-1527
Publisher: Routledge
Date published: 2018
DOI: 10.1080/09687599.2018.1491390
ISSN: 0968-7599
Copyright note: Copyright © 2018 The Author. This is an Author's Accepted Manuscript of an article published in Disability and Society 2018, available online: http://www.tandfonline.com/10.1080/09687599.2018.1491390
Organisation Unit: University of the Sunshine Coast, Queensland; School of Health and Sport Sciences - Legacy; School of Science, Technology and Engineering; School of Health and Behavioural Sciences - Legacy
Language: English
Record Identifier: 99450853702621
Output Type: Journal article

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