Carer experience of end-of-life service provision: A social network analysis

R Leonard; D Horsfall; John P Rosenberg; K Noonan

doi:10.1136/bmjspcare-2017-001344

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Carer experience of end-of-life service provision: A social network analysis

Journal article

Open access

Peer reviewed

Carer experience of end-of-life service provision: A social network analysis

R Leonard, D Horsfall, John P Rosenberg and K Noonan

BMJ Supportive and Palliative Care, Vol.10(2), pp.1-7

2020

DOI: https://doi.org/10.1136/bmjspcare-2017-001344

Appears in Cancer Research Cluster Research Collection

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Abstract

Objective: To identify the position of formal service providers in the networks of those providing end-of-life care in the home from the perspective of the informal network. Methods: Using third-generation social network analysis, this study examined the nature and strength of relationships of informal caring networks with formal service providers through individual carer interviews, focus groups of caring networks and outer network interviews. Results: Service providers were usually highly valued for providing services, equipment, pain management and personalised care for the dying person plus support and advice to the principal carer about both caring tasks and negotiating the health system. However, formal service providers were positioned as marginal in the caring network. Analysis of the relative density of relationships within networks showed that whereas relationships among family and friends had similar density, relationships between service providers and family or friends were significantly lower. Conclusion: The results supported the Circles of Care model and mirror the perspective of formal service providers identified in previous research. The research raises questions about how formal and informal networks might be better integrated to increase their effectiveness for supporting in-home care.

Details

Title: Carer experience of end-of-life service provision: A social network analysis
Authors: R Leonard (Author) - University of Western Sydney
D Horsfall (Author) - University of Western Sydney
John P Rosenberg (Author) - Queensland University of Technology
K Noonan (Author) - University of Western Sydney
Publication details: BMJ Supportive and Palliative Care, Vol.10(2), pp.1-7
Publisher: B M J Group
Date published: 2020
DOI: 10.1136/bmjspcare-2017-001344
ISSN: 2045-435X
Copyright note: Copyright © Article author(s) (or their employer(s) unless otherwise stated in the text of the article) 2018. This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work noncommercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/ by-nc/4.0/
Organisation Unit: School of Health - Nursing; University of the Sunshine Coast, Queensland; Cancer Research Cluster; School of Nursing, Midwifery and Paramedicine - Legacy
Language: English
Record Identifier: 99451000002621
Output Type: Journal article

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Web Of Science research areas: Health Care Sciences & Services

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