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Children Society - 2024 - Skorka - Caregivers perspectives of support needs for adolescents with fetal alcohol spectrum170.73 kB
Published Version (Advanced Access)CC BY-NC-ND V4.0, Open Access
Journal article
Caregivers' perspectives of support needs for adolescents with fetal alcohol spectrum disorder
Children & Society, Vol.Advanced access
10-Jan-2024
Abstract
Research focused on fetal alcohol spectrum disorder (FASD) is often deficit‐focused, limiting a holistic understanding of individuals' support needs. Families of adolescents with FASD also struggle to access appropriate services. Using semi‐structured interviews, the current study explored the perspectives of seven caregivers of adolescents with FASD in Australia. Interpretative phenomenological analysis revealed that anxiety was perceived as a main barrier to participation for adolescents; however, incorporating adolescents' strengths facilitated participation. Additionally, caregivers described that professionals did not effectively collaborate and lacked understanding of FASD. Considering these findings, recommendations to optimise outcomes for adolescents with FASD and their families are provided.
Details
- Title
- Caregivers' perspectives of support needs for adolescents with fetal alcohol spectrum disorder
- Authors
- Kelly Skorka (Corresponding Author) - The University of QueenslandJodie Copley (Author) - The University of QueenslandCatherine McBryde (Author) - The University of QueenslandPamela J. Meredith (Author) - University of the Sunshine Coast, Queensland, School of Health - Occupational TherapyNatasha Reid (Author) - The University of Queensland
- Publication details
- Children & Society, Vol.Advanced access
- Publisher
- Wiley-Blackwell Publishing Ltd.
- DOI
- 10.1111/chso.12831
- ISSN
- 1099-0860; 0951-0605
- Copyright note
- © 2024 The Authors. Children & Society published by National Children's Bureau and John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non-commercial and no modifications or adaptations are made.
- Grant note
- Australian Government Research Training Program Scholarship
- Organisation Unit
- School of Health - Occupational Therapy; Cancer Research Cluster
- Language
- English
- Record Identifier
- 99992796402621
- Output Type
- Journal article
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