Access, understanding, promotion and maintenance of good health: Evaluation of knowledge transfer of people with intellectual disabilities to bridge the health information and disease prevention in public health

Lisa T. Dam; Petra Heidler; Isabel King

doi:10.3389/fpubh.2022.915970

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Access, understanding, promotion and maintenance of good health: Evaluation of knowledge transfer of people with intellectual disabilities to bridge the health information and disease prevention in public health

Journal article

Open access

Peer reviewed

Access, understanding, promotion and maintenance of good health: Evaluation of knowledge transfer of people with intellectual disabilities to bridge the health information and disease prevention in public health

Lisa T. Dam, Petra Heidler and Isabel King

Frontiers in Public Health, Vol.10, pp.1-8

2022

DOI: https://doi.org/10.3389/fpubh.2022.915970

PMCID: PMC9551020

PMID: 36238251

Appears in UniSC Diversity and Inclusion Research Collection

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Abstract

accessibility

health inequalities

health information

health literature

intellectual disabilities

knowledge transfer

communication barriers

easy-to-read language

UniSC Diversity Area - Disability and Inclusion

The importance of patient empowerment among people with intellectual disabilities (ID) is steadily growing, yet multiple health and health literacy challenges still make this population more vulnerable to health disparities. Inadequate access to essential health and other basic services and the lack of involvement in health and educational research are some of the most crucial factors contributing to this inequality. A greater effort must be made to include people with ID in health literacy and communication research, preliminary focusing on language, including pictorial language. This community case study aimed to document the experiences of answering a pilot questionnaire to evaluate the problems of people with mild to moderate ID, 6A00.0 and 6A00.1 according to ICD 11. Our results show that most patients acquire health information from their physician or a medical professional. In preparing appropriate questionnaires, special education teachers can give valuable insight. However, participants were easily distracted and needed support in focusing on the questionnaire. Easy to read language, a simple format, big fonts and the presence of confidential caretakers are needed. This indicates, that semi structured interviews with a trained interviewer might be most suitable for measuring the knowledge transfer of people with ID. The results of this case study highlight the need to develop an appropriate questionnaire and emphasize the need for a continued dialogue between people with ID and healthcare providers.

Details

Title: Access, understanding, promotion and maintenance of good health: Evaluation of knowledge transfer of people with intellectual disabilities to bridge the health information and disease prevention in public health
Authors: Lisa T. Dam (Author) - University of Applied Sciences Burgenland
Petra Heidler (Corresponding Author) - University for Continuing Education Krems (Krems, Austria)
Isabel King (Author) - University of the Sunshine Coast, Queensland, School of Health and Behavioural Sciences - Legacy
Publication details: Frontiers in Public Health, Vol.10, pp.1-8
Publisher: Frontiers Research Foundation
Date published: 2022
DOI: 10.3389/fpubh.2022.915970
ISSN: 2296-2565
PMID: 36238251; PMC9551020
Copyright note: © 2022 Dam, Heidler and King. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
Organisation Unit: School of Health - Biomedicine; University of the Sunshine Coast, Queensland; School of Health and Behavioural Sciences - Legacy; School of Health - Public Health
Language: English
Record Identifier: 99681397902621
Output Type: Journal article

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Collaboration types: Domestic collaboration; International collaboration
Web Of Science research areas: Public, Environmental & Occupational Health

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