A pilot study of the effectiveness of home teleconsultations in paediatric palliative care

N K Bradford; Jeanine Young; N R Armfield; Mark E Bensink; L Pedersen; Anthony Herbert; Anthony C Smith

doi:10.1258/jtt.2012.GTH103

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A pilot study of the effectiveness of home teleconsultations in paediatric palliative care

Journal article

Peer reviewed

A pilot study of the effectiveness of home teleconsultations in paediatric palliative care

N K Bradford, Jeanine Young, N R Armfield, Mark E Bensink, L Pedersen, Anthony Herbert and Anthony C Smith

Journal of Telemedicine and Telecare, Vol.18(8), pp.438-442

2012

DOI: https://doi.org/10.1258/jtt.2012.GTH103

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Abstract

We conducted a pilot study to investigate the effectiveness of a home telehealth service for paediatric palliative care consultations. Over a 10 week period, 14 of the 17 caregivers approached to be part of the study agreed to participate. Families were allocated, non-randomly, to a control group (usual care) or an intervention group (usual care with the addition of home telehealth consultations). The primary outcome measure was quality-of-life score. Caregivers were surveyed for up to 99 days following recruitment. A descriptive analysis of the quality-of-life data showed no differences between caregivers in the two groups. However, important lessons were learnt regarding factors which influence the success of studies in this population group, and the domains of caregiver quality-of-life that warrant intervention. Palliative care is complex, and multiple interventions and supports are required if care is to be managed at home. Home telehealth consultations are a feasible and acceptable means of facilitating a palliative care consultation which can reduce the burden on families at a distressing time.

Details

Title: A pilot study of the effectiveness of home teleconsultations in paediatric palliative care
Authors: N K Bradford (Author) - University of Queensland
Jeanine Young (Author) - Royal Children's Hospital, Brisbane
N R Armfield (Author) - University of Queensland
Mark E Bensink (Author) - Fred Hutchinson Cancer Research Centre, United States
L Pedersen (Author) - Royal Children's Hospital, Brisbane
Anthony Herbert (Author) - Royal Children's Hospital, Brisbane
Anthony C Smith (Author) - University of Queensland
Publication details: Journal of Telemedicine and Telecare, Vol.18(8), pp.438-442
Publisher: Sage Publications Ltd.
Date published: 2012
DOI: 10.1258/jtt.2012.GTH103
ISSN: 1357-633X
Organisation Unit: School of Health - Nursing; University of the Sunshine Coast, Queensland; School of Nursing, Midwifery and Paramedicine - Legacy
Language: English
Record Identifier: 99449009602621
Output Type: Journal article

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