Dissertation
Translating Emma: Exploring the lived experience of chronic pain in adolescents through a fictional narrative
University of the Sunshine Coast, Queensland
Doctor of Philosophy, University of the Sunshine Coast, Queensland
2022
DOI:
https://doi.org/10.25907/00673
Abstract
The primary aim of this research is to create a Young Adult novel that provides a fictional representation of the lived experience of adolescent chronic pain. The narrative themes explored include impacts on youth identity formation due to reduced social interaction, arising familial tensions, challenges associated with language utilised in the health system, and peer assumptions, such as adolescents with chronic pain are ‘faking it’. The creative artefact is founded in current scholarly understandings of chronic pain, thematic analysis of interviews conducted with adolescents, and the interrogation of the Young Adult (YA) ‘Sick-Lit’ genre as the work’s critical context. These investigations are framed by the issue of ‘translation’, referring to how the experience of chronic pain can be ‘lost in translation’ through the various discourses and tensions encountered by adolescents living with chronic pain: from medical practitioners to the families of adolescents, from private lives to the general public, and from documented articulations to their fictional representation. This research seeks to broaden awareness of chronic pain for adolescents, families and the wider reading public.
Details
- Title
- Translating Emma: Exploring the lived experience of chronic pain in adolescents through a fictional narrative
- Authors
- Julianne Mead - University of the Sunshine Coast, Queensland, School of Business and Creative Industries
- Contributors
- Ross Watkins (Principal Supervisor) - University of the Sunshine Coast, Queensland, School of Business and Creative IndustriesDyann Ross (Co-Supervisor) - University of the Sunshine Coast, Queensland, School of Law and Society
- Awarding institution
- University of the Sunshine Coast, Queensland
- Degree awarded
- Doctor of Philosophy
- Publisher
- University of the Sunshine Coast, Queensland
- DOI
- 10.25907/00673
- Organisation Unit
- School of Business and Creative Industries; School of Law and Society
- Language
- English
- Record Identifier
- 99659798202621
- Output Type
- Dissertation
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