Abstract
Research has highlighted the changes and challenges that arise from a dementia diagnosis, unfortunately the focus is largely on deficits. With a rise in emphasis on care partnerships and the needs of both persons with dementia and their informal care givers are now considered, including how shared activities can be affected by a dementia diagnosis: Previous research has reported [add 1-2 points about how it changes]
The current study aimed to extend this research by exploring what remains important for dyads post-dementia diagnosis, particularly regarding leisure activities from a positive psychological perspective.
People living with dementia and their partners were recruited as part of a larger study into the effects of purposeful gardening activities on well-being. Informal interviews took place after several weeks of gardening activities. Participants were asked about what activities they previously engaged in together for fun, what activities they do now and how those compare. The relaxed context allowed for greater conversation and the use of prompts to gain a better understanding of their experiences.
Transcribed interview audio-recordings were thematically analysed and several reoccurring themes arose across dyads, including the efforts participants make towards shared activities and how decisions about activities are made. The findings provide greater insight into what is important to and for the well-being of persons with dementia and their partners as a couple.