Conference poster
Primary caregiver: a vulnerable role
Australian Palliative Care Conference: Palliative Care – everyone’s business, 12th (Canberra, Australia, 03-Sep-2013–06-Sep-2013)
Australian Palliative Care Conference
2013
Abstract
Seven of the "Standards for Providing Quality Palliative Care for all Australians" supported by Palliative Care Australia directly reference caregivers. The fifth standard specifically states that: "The primary caregiver/s is provided with information, support and guidance about their role according to their needs and wishes" (Palliative Care Australia, May 2005, p. 6). While the standards confirm the expectations for care delivery, it is acknowledged that everyday practice gaps exist. A consumer perspective supports that potential caregivers need to be fully informed in order to correctly understand or frame their role. This study theoretically explores the vulnerabilities of experience that may impair the informed acceptance by caregivers of their role. To do this it will ask: "In what ways is a potential caregiver vulnerable to misinterpreting the requirements and commitments associated with undertaking the actual role?" The application of Alfred Schutz's phenomenological writings provide insight into how the role of the "caregiver" may differ from what was originally expected. The application of 14 vulnerabilities of experience, adapted from Erving Goffman's social theory, describes how this role may be easily misinterpreted or misframed. Failure to address these inherent vulnerabilities risks unsatisfactory caregiving situations, as the caregiver may not always be fully aware of what is expected of them. This theoretical review highlights how current practices pertaining to initial discussions of the caregiver's role and expectations can be improved.
Details
- Title
- Primary caregiver: a vulnerable role
- Authors
- Amanda J Henderson (Author)S Henderson (Author)
- Conference details
- Australian Palliative Care Conference: Palliative Care – everyone’s business, 12th (Canberra, Australia, 03-Sep-2013–06-Sep-2013)
- Publisher
- Australian Palliative Care Conference
- Date published
- 2013
- Organisation Unit
- School of Health - Nursing; University of the Sunshine Coast, Queensland; School of Nursing, Midwifery and Paramedicine - Legacy
- Language
- English
- Record Identifier
- 99449094502621
- Output Type
- Conference poster
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