Abstract
Patient and Public Involvement (PPI) is an approach that places the experiences of the community members at the centre of healthcare. It is a familiar concept to many who work in palliative and end‐of‐life care, most notably in the placement of the patient and their family at the centre of holistic care. However, the mainstreaming and medicalisation of palliative care has permitted the patient and public voices of those experiencing end‐of‐life issues to be diminished. This is especially true of already disenfranchised population groups. This chapter reframes the nature of engagement between palliative care services and the ordinary citizenry that makes up “patients” and the “general public,” to enable their participation in – and control of – care, communities, services, and research.