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Abstract
Do Patient-Experience Publications Have Authors With Patient Experience?
Current Medical Research and Opinion, Vol.39(Supplement 1), pp.S17-S18
Annual Meeting of the International Society for Medical Publication Professionals, 19th (Washington DC, United States, 24-Apr-2023–26-Apr-2023)
2023
Abstract
Objective: Patient-experience research, defined as “capturing patients’ experiences, perspectives, needs, and priorities”, is increasingly valued, especially in health technology assessment (HTA). Patient-authored publications of this research are encouraged. Our objectives were to quantify patient-experience publications, investigate patient authorship and publication accessibility, and evaluate alignment of patient authorship with HTA patient involvement values.
Methods: We searched PubMed to identify a dataset of patient experience publications (01 January 1900–31 December 2012; Table) and used non-parametric testing to compare publicationaccessibility with and without patient authors. We evaluated value alignment through critical reflection.
Results: Patient-experience publications have increased rapidly (doubled in 5 years; 2018–2022), but <1% have authors with patient experience (Table). Publications with patient authors were significantly more accessible (open access, p < .0001; plain language summaries, p¼.0124). Patient authorship exemplified all HTA patient involvement values (relevance, fairness, equity, legitimacy, capacity building). Study limitations include search scope and functionality.
Conclusions: Patient-experience publications rarely had authors with patient experience. Patient authorship was significantly associated with increased publication accessibility, exemplified HTA patient involvement values, and should be encouraged.
Details
- Title
- Do Patient-Experience Publications Have Authors With Patient Experience?
- Authors
- Dawn Lobban (Author) - Envision Pharma GroupAmanda Boughey (Author) - Envision Pharma GroupRichard Stephens (Author)Simon R Stones (Author) - Envision Pharma GroupKaren Woolley (Author) - University of the Sunshine Coast, Queensland, School of Health and Sport Sciences - Legacy
- Publication details
- Current Medical Research and Opinion, Vol.39(Supplement 1), pp.S17-S18
- Conference details
- Annual Meeting of the International Society for Medical Publication Professionals, 19th (Washington DC, United States, 24-Apr-2023–26-Apr-2023)
- Publisher
- Taylor & Francis
- Date published
- 2023
- DOI
- 10.1080/03007995.2023.2194075
- ISSN
- 1473-4877; 0300-7995
- Copyright note
- (c) 2023 International Society for Medical Publication Professionals (ISMPP). Published by Informa UK Limited, trading as Taylor & Francis Group. This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives License (http://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited, and is not altered, transformed, or built upon in any way. The terms on which this article has been published allow the posting of the Accepted Manuscript in a repository by the author(s) or with their consent.
- Organisation Unit
- Faculty of Science, Health, Education and Engineering; University of the Sunshine Coast, Queensland; School of Health and Sport Sciences - Legacy
- Language
- English
- Record Identifier
- 99966898402621
- Output Type
- Abstract
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- Web Of Science research areas
- Medicine, Research & Experimental