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Published VersionCC BY-NC-ND V4.0, Open Access
Abstract
Diversity in patient authors: a randomized bibliographic analysis
Current Medical Research and Opinion, Vol.39(Supplement 1), pp.S16-S17
Annual Meeting of the International Society for Medical Publication Professionals, 19th (Washington DC, United States, 24-Apr-2023–26-Apr-2023)
2023
Abstract
Objective: Consistent with diversity, equity, and inclusion principles, patients are authoring publications. Whether known publication biases are reproduced with patient authorship is unknown. If so, most patient authors would be men from high-income countries. Our objective was to conduct the first study on patient author diversity to inform evidence-based authorship practices.
Methods: We searched PubMed to identify a patient-authored publications dataset (01/0/1900–31/12/22; recommended/common affiliations:“patient author”;“patient partner”,“carer”,“caregiver”). A randomized sample (50%) was used to quantify patient author characteristics.
Results: Patient-authored publications (100% English) have increased rapidly (Table). Most patient authors were women(65.8%) from high-income countries (99.5%). When patients were first authors, most (83.3%) were women. Study limitations include PubMed searchability (e.g. affiliation/article tagging).
Conclusions: This is the first study to show that most patient authors are women from high-income countries. Compared to known publication biases, the income gap persists, but the gender gap is reversed. As patient-authored publications increase,our findings could help target efforts to enhance patient author diversity, equity, and inclusion.
Details
- Title
- Diversity in patient authors: a randomized bibliographic analysis
- Authors
- Karen Woolley (Author) - University of the Sunshine Coast, Queensland, School of Health and Sport Sciences - LegacyAmanda Boughey (Author) - Envision Pharma GroupTrishna Bharadia (Author)Richard Stephens (Author)Beverley Yamamoto (Author) - The University of OsakaDawn Lobban (Author) - Envision Pharma Group
- Publication details
- Current Medical Research and Opinion, Vol.39(Supplement 1), pp.S16-S17
- Conference details
- Annual Meeting of the International Society for Medical Publication Professionals, 19th (Washington DC, United States, 24-Apr-2023–26-Apr-2023)
- Publisher
- Taylor & Francis
- Date published
- 2023
- DOI
- 10.1080/03007995.2023.2194075
- ISSN
- 1473-4877; 0300-7995
- Copyright note
- This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives License (http://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited, and is not altered, transformed, or built upon in any way. The terms on which this article has been published allow the posting of the Accepted Manuscript in a repository by the author(s) or with their consent.
- Organisation Unit
- Faculty of Science, Health, Education and Engineering; University of the Sunshine Coast, Queensland; School of Health and Sport Sciences - Legacy
- Language
- English
- Record Identifier
- 99966898102621
- Output Type
- Abstract
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- Web Of Science research areas
- Medicine, Research & Experimental